Hey people,
I hope life is treating you better than you hoped for and never worse than you could have imagined.
I can’t say that for my own life right now, my son is now on his 86th day in hospital.
They have found the real source of the infection, it is the liver, it is loaded with roughly 23 to 26 abscesses of all varying sizes, this has caused his lung to fill with fluid and so his breathing is laboured. He has a ‘tachi’ heart rate pretty much all the time, his BP is one day on the floor, the next day through the roof. His temperature ranges from 35.9 to 40.4 at any given time. In short he is in a world of trouble.
He has had his stomach drained of infection, he is currently having his lung drained of fluid, so far 3100ml has been drained off his lung so far, the drain is being left in over the weekend in case the lung starts filling up again. Thursday evening he had the MET team, (medical emergency team) called to him because his stats were all over the place and a crash team were on stand by.
He is stable again now, and it has been decided that he needs to be transferred to a different, better, hospital that specialises in hepatobiliary. They also specialise in nephrology and respiratory too. So they can cover all aspects of his conditions.
I have been informed that the reason his lung and liver is so badly compromised now is because the urology consultant and his team at our local hospital have delayed positive treatment of the lung and liver while they debated the need for a nephrostomy on a dead kidney even after being informed back at the beginning of September, by his own Urology Consultant from a different hospital, that it was not a viable option. This has taken them roughly the entire 86 days. They then decided it would be pointless. I am formally taking them on when my son is well again, and he will be well again. It will just take time and a lot of positive mental attitude from us both. He now has the right people surrounding him and they will help him. They have to.
I have nothing else left to say really, I just wanted to bring you up to speed so you know where he’s at.
Gemma - Journey of Self discovery 
Oh, Gemma, dearest Gemma. My heart truly breaks for you and your son. You have been through so much and I know he has, too. I hope he will finally get the better treatment he needs at the new location. Know that I will continue to keep you both in my prayers. As a mum, it must be gut-wrenching for you to go through this. We both know you are strong and are doing your best. I can feel that. Keep fighting for him. I know you will. At the same time, I wish I could wrap my arms around you and hug you tightly, letting you know there is someone here who cares about you very much. 💖💖💖
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Sending my thoughts and prayers to you and your son, dear Gemma 💙
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Sending all the 💗❤️🔥💗 in the 🌎🌏🌍 to you and your son, Gemma, from out here in the cornfields of southern Indiana. Thank you so much for sharing this with us and may all the forces of goodness surround and empower you both. 🥰🤗🥰
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I can’t even begin to imagine how hard this has been on you and your son and I will continue to pray for the both of you!
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Sending you healing thoughts for your son and willing you strength and forbearance as the fight continues.
Be well, don’t forget to take care of yourself as well.
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Sending prayers your way
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Wow. I’m so sorry that you and your son are going through this. I pray he will start to recover quickly now that you have the right people on his team.
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I am just catching up with your journey, my beautiful friend across the pond. I can’t imagine what you are going through as his mother. I am so sorry. You are both in my thoughts and prayers ❤
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Prayer…
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