Currently dealing with… Part 2

Hey Peoples, me again.

I’m tired, cranky and in need of some kind of magical intervention in my life right now. If it can go wrong, it is doing and with alarming regularity.

I have a question, why after six weeks of my son being in hospital does anyone think it might be, that I still have to explain to the nursing staff on his ward, the reason WHY a pressure sore on my son’s right buttock needs the specialist HEALING CREAM and a DRESSING?? And also, WHY it is dangerous to leave it both uncovered and untended.

So, he has been in hospital 6 weeks now, going into his 7th and every single day has been one problem after another, generally created by either a lack of understanding of his core disability (Spina Bifida) or a lack of understanding of how to dress pressure sores correctly, and how to change a stoma bag.
Now, Okay, I know the stoma bag and pressure sore thing is something that a district nurse would be better placed to deal with, but that’s not on the cards as he is in hospital with hospital nurses looking after him. I am fairly sure that they all went to the same nursing colleges though. Maybe I’m wrong.

I would expect them to have at least a rudimentary understanding of how it all works and WHY it needs to be done on a regular 24 hour basis. I thought that would be nursing 101.

Anyway, that aside, (but only slightly as it still features) he has now gotten over Covid and has the all clear since Tuesday the 13th. So imagine my absolute horror and frustration when I received a phone call from the ward staff nurse on Wednesday the 14th telling me that he has tested positive for MRSA a hospital superbug. I am beside myself, because my understanding of this particular hospital bug is that if the ward is kept properly cleaned at all times, the bug can’t thrive, let alone infect already sick patients.

They tempered their news with this, ‘please don’t be too worried, there is a very effective dual treatment that works to kill this bug and it is no longer considered to be the killer bug that it was originally.’ OH well, that’s alright then!!! Isn’t it??? NO!!! It bloody isn’t!

He is currently sitting on an open wound, the MRSA is around the groin area, it is not a great journey for the MRSA to travel to the open wound on his backside and infect it. We are then dealing with a whole different level of infection. Please also remember, he is currently in hospital because he has a massive septic infection in his hips, liver, right kidney and stomach, apparently caused by his right kidney leaching infection into his system slowly over time. It has flown under the radar of detection via the usual routes of blood tests and urine samples. It only showed up on an MRI scan and everyone was duly shocked. They are still trying to identify the infection so that they can match the antibiotics to it to clear it up properly. we are 6 weeks in.

Now he has another infection, this time picked up in hospital. The thing I don’t understand, is MRSA is apparently a one to one contact bug, it’s passed through human contact. He has not been out of bed in 6 weeks, only nursing staff have touched him and the radiology staff. That tells me one of them has passed this bug onto him. How on earth are we supposed to have any kind of faith in these people to fix him if all they keep doing is give him more infections?

Okay, so back to the open wound, if the nurse did as she was supposed to and dressed that sore on his behind with the specialist healing cream and the correct wound dressing every 24 hours, then I would not be concerned about the MRSA travelling to that area as it would be sealed off. Currently he is sitting on an inco sheet which is rough on his skin and that is actually breaking down the pressure sore further so I am as mad as hell that I am still having to spell out the very crucial need to keep that sore tended and dressed properly.

Now, cast your mind back to that ‘please don’t worry’ statement. The treatment for the MRSA is a dual treatment. He contracted the bug on wednesday 14th September, and up until yesterday, Friday 16th he was only applying a cream to the inside of his nostrils 3 times a day. A full medicated body wash was supposed to be being applied once a day along with the application of the ointment to his nose. When do you suppose they did the first body wash?

Oh , that would be Friday afternoon after I had raised the roof because it had been sat on his cabinet for two days still in the pharmacy bag, unopened and ignored since it had arrived on Wednesday.

I despair. I truly do despair.

He finally has the stomach drain fitted to remove as much of the infection from his stomach as they can, only a week after it was supposed to have been done, and only because on the 13th I came away from a respite break and drove over to the hospital to find out what the hell was going on. He had the drain on the 15th. He should have had it on the 8th Sept.

It’s only a week, not much time to wait is it?

Except that on the 7th of September, the doctor who told me he needed the drain also informed me that it was urgently required because of a complication with the end of his VP Shunt tube in his stomach sitting in the pool of infection. If the infection got inside the tube it would travel up the tube and to his brain. No prizes for guessing the horrendous outcome if that happened.

So an extra week sitting in all that currently unnamed infection, are they sure that’s not a week too long now??

For those of you who don’t know, a VP Shunt is a piece of equipment that is fitted into a ventricle in the brain to drain off excess fluid in the brain when the ventricles either don’t work properly or at all due to hydrocephalus. Hydrocephalus is a condition closely associated with Spina Bifida that causes a buildup of excess fluid in the brain. Most children born with Spina Bifida would normally have hydrocephalus as well, the stats when my son was born was only 1 in every 100 born with SB would not have hydrocephalus.

A tube runs from the shunt in the ventricle down the side of the skull, along the neck and down over the collar bone and into the stomach where the excess fluid drains off into the system safely. The tube is roughly 4 or 5 feet long to allow for growth and is never interfered with unless the shunt develops a problem. My son has had his shunt since he was 9 months old. He’s only ever had one problem with the tube when it kinked because the hydrotherapy pool at physio was too hot for him and it made him ill for 3 weeks. He was 10 years old then. Unsurprisingly, that happened at the same hospital he is currently in. The ineptitude appears to span 20 years and counting.

My apologies for the medical lesson, I just need to dump all this stuff somewhere before I go stark raving mad and end up needed a white jacket with shiney buckles up the back and wrap a round sleeves, or a new heart.

Currently my palpitations are actually visible to the naked eye they are so severe and constant.

The nurse told me not to worry, she would do the medicated wash down every day from now on… she never agreed to dress the pressure sore….

Why do I need to worry?

Published by gemstrong63

So, One blog year later, I've been spanked, hard! I have spanked myself almost as hard, I have spanked others even harder. I'm now heading for a different road, one that still includes all the best bits of me, all the naughty bits, all the spanking bits, all the hot steamy bits, and I'm creating characters to play out my delightful erotic fantasies, I hope you enjoy the new ride as much as the previous one…

10 thoughts on “Currently dealing with… Part 2

  1. I would be raising all kinds of hell in there about this. My late mother was a nurse for like 35 years (total – she kinda refused to retire after she retired) and I well remember her talking about having to take care of patients who developed bed sores and the things she had to do to prevent them, like turning the patient or, really, rearranging them so that they weren’t always lying in one spot and I was pretty amazed because my mom wasn’t a “big” woman but could get the heaviest patients rearranged to cut down the chance of bed sores – and she said that they’re a bitch to deal with and getting them healed.

    Some things are… inexcusable. I learned to have a great respect for nurses because of my mother but I’ve encountered some of them who’ve made me wonder why they’re in a job where they’re really supposed to care for – and care about – the patients assigned to them. It’s aggravating and you just gotta hang in there and make sure that they’re giving your son the best care that he needs and not treating you like you’re an idiot, which some nurses tend to do these days.

    Liked by 1 person

    1. I wish your late Mom was still around, I would hire her in a heartbeat. What I wouldn’t give right now for a nurse who had that level of working knowledge of not only how to prevent a pressure sore, but also the knowledge of just how difficult it is to get the damn things healed once they are present. She sounds like one of the best old school nurses that used to frequent the hospitals before nursing became a job and stopped being a vocation.
      I have raised Cain at the hospital every single time I have gone in. I have filed reports against them, I have threatened them with lawsuits, I have called for an intervention meeting with the head of each department that is currently dealing with my son’s health issues. That will take place next week and I am trying to contain my temper now before that meeting because I need to be clear and concise and articulate when I sit down with them. Currently I am like a boiling volcano waiting to erupt at the least possible provocation.
      I am hanging in there Kdaddy, but it is proving to be very difficult this time around. Thank you for the support, it’s appreciated.xx

      Liked by 1 person

  2. Dearest Gemma, the latest news provided on the development of your son’s hospitalization has saddened me a lot, I would like to be able to help you and give you confidence and hope, but how can I do that … through an injection?
    I love you and your son, and I keep you in my thoughts and prayers


    1. Luisa, your continued support and thoughts are all the help I need, please don’t feel too sad, I am strong and I will fight to get him the help he needs and this nightmare too shall be consigned into his history as a long hard battle once again won. It’s the only way forward dear Lady. Thank you for your kind words, one day we shall chat quietly again about Shakespeare or view a painting and discuss where it takes us from where it came. Much love Luisa xx

      Liked by 1 person

  3. Oh, Gemma, I feel for you. You are such a kind, caring soul. I hate that any of this has happened to you. Please know that I care and will continue to keep you and your son in my thoughts and prayers. It’s a hard road, but don’t give up, girl. I know you got this. Stay strong for you and your son. When it comes to strong, I know no other woman like you who can handle what you’re dealing with. You’re awesome and something is going to break for you. Love you, hun! xx

    Liked by 1 person

  4. Beautiful, Gemma… I am sending much love and support across the pond, my dear friend. I wish more than anything that your son would receive the good care that he deserves. I’m sorry for the pain, fear, and constant frustration. You have my love ❤ XOXO


  5. Continued healing thoughts towards your son and a wish for
    Peace for you. Nursing care varies from person to person and some are better at care than others. May the fight improve and be less of a struggle.

    Liked by 1 person

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